Skip to main content

CRYSVITA related events

Meet Kristen,
caregiver to Cora, who is living with XLH

Join us for upcoming events featuring the latest insights on CRYSVITA (burosumab-twza) and X-linked hypophosphatemia (XLH).

Speaking with your Doctor:
Advocate with Confidence

ONLINE EVENT

DAY AND TIME

Thursday, August 28, 2025

7:30 PM EST

LOCATION

Zoom

PRESENTERS

  • Carrie, Patient Ambassador
  • Dr. Laila Tabatabai, MD, Endocrinology

EVENT DESCRIPTION

Hear from Patient Ambassador Carrie and Dr. Laila Tabatabai as they offer suggestions on asking effective questions, advocating for personalized treatment, and building a lasting patient-provider bond.

Have a question?
See our FAQs below

This presentation is brought to you by Kyowa Kirin, Inc.
The presenters are paid to speak on behalf of the Company.

Coming soon

Stay tuned for more upcoming online and in-person events!

This site will be updated with details for future upcoming events on exciting topics about XLH management. Check back here regularly for the latest event details and information, or sign up to be notified about CRYSVITA related events in the future.

Online Events

Connect and learn more by attending one of our online events, hosted on Zoom and free to attend. Join us from the comfort of your home to hear the latest findings and perspectives on CRYSVITA and XLH.

In-person Events

Come join us to experience the excitement of our in-person events and hear from Patient Ambassadors as they share their experience living with XLH and being treated with CRYSVITA.

Sign up to receive the latest information on CRYSVITA and to get info about future events.

Frequently Asked Questions About CRYSVITA Related Events

These events are intended for individuals in the U.S. living with XLH and their families and caregivers.

Identify the event you would like to attend, click the register button, and complete the
registration form. Once you have registered, you will receive a confirmation email with
program details.

We recommend downloading the Zoom app in advance for the best experience, but you
can also join using a web browser.

If you are having difficulty with the online registration, please call 1-844-648-0700.

Check your spam or junk folder first. If you still can’t find the email, contact
1-844-648-0700 at least a day before the event.

No, there is no cost to attend these programs.

Pre-registration is required for all online events. Upon registering and about 1 day before
the event, you will receive a confirmation email with the login information and event URL.
These emails include helpful information about logging in to the session and a help desk
phone number to call if you are having difficulty connecting.

For online events, please log on to the session 5 minutes before the start of the program.

If you try to join early, you may see this message. Please wait until the start time.

Zoom is a video conferencing and communications platform that allows users to connect
with video, audio, phone, and chat.

No, you do not need a Zoom account to join the online event. Simply use the link provided
in your confirmation or reminder email.

Yes, you can join from a smartphone or tablet using the Zoom app. Make sure you have a
stable internet connection.

No, attendees will be automatically muted and your camera will be off.

Check your internet connection and try refreshing the link. You can also close Zoom and
rejoin. If issues persist, call the help desk number in your reminder email.

Yes, there will be a Q&A feature during the session. You can type your questions into the
Q&A box at any time.

Stay informed

Sign up to learn more about CRYSVITA, connect with a support community, and receive invites to important educational events.

STAY INFORMED
What is CRYSVITA?

CRYSVITA is a prescription medicine used to treat adults and children 6 months of age and older with X-linked hypophosphatemia (XLH).

What is CRYSVITA?

CRYSVITA is a prescription medicine used to treat adults and children 6 months of age and older with X-linked hypophosphatemia (XLH).

Important Safety Information

You should not take CRYSVITA if:

  • You take an oral phosphate supplement and/or a specific form of vitamin D supplement (such as calcitriol, paricalcitol, doxercalciferol, calcifediol).
  • Your phosphorus levels from a blood sample are within or above the normal range for age.
  • You have kidney problems.

What is the most important information you should know about CRYSVITA?

  • Some patients developed allergic reactions (e.g., rash and hives) while taking CRYSVITA. Your doctor will monitor you for symptoms of an allergic reaction while you are taking CRYSVITA. Your treatment may need to be discontinued for serious allergic reactions.
  • High levels of phosphorus in the blood have been reported in some patients taking CRYSVITA. This may be related to a risk of high calcium levels in the kidneys. Your doctor will collect blood samples to monitor your levels. If you are already taking CRYSVITA, dose interruption and/or dose reduction may be required based on your serum phosphorus levels.
  • Administration of CRYSVITA may result in reactions at the injection site, such as hives, reddening of the skin, rash, swelling, bruising, pain, severe itching of the skin, and collection of blood outside of a blood vessel (i.e., hematoma). Call your doctor if you develop an injection site reaction. CRYSVITA may be discontinued if severe injection site reactions occur.

What are the possible side effects of CRYSVITA?

  • Adverse reactions that were seen in children with XLH are:

    • Fever
    • Injection site reaction
    • Cough
    • Vomiting
    • Pain in arms and legs
    • Headache
    • Tooth abscess
    • Dental cavities
    • Diarrhea
    • Decreased vitamin D levels
    • Toothache
    • Constipation
    • Muscle pain
    • Rash
    • Dizziness
    • Nausea

  • Adverse reactions that were seen in adults with XLH are:

    • Back pain
    • Headache
    • Tooth infection
    • Restless legs syndrome
    • Decreased vitamin D levels
    • Dizziness
    • Constipation
    • Muscle spasms
    • Phosphorus levels increased in the blood
  • Narrowing of the spaces within the spine is common in adults with XLH, and pressure on the spinal cord has been reported in adults taking CRYSVITA. It is not known if taking CRYSVITA worsens the narrowing of the spaces within the spine or the pressure on the spinal cord.

Before taking CRYSVITA, tell your doctor about all of your medications (including supplements) and medical conditions, including if you:

  • Are taking oral phosphate and/or active vitamin D (such as calcitriol, paricalcitol, doxercalciferol, calcifediol).
  • Are pregnant, think you may be pregnant, or plan to become pregnant. There is not enough experience to know if CRYSVITA may harm your unborn baby. Report pregnancies to the Kyowa Kirin, Inc. Adverse Event reporting line at 1-844-768-3544.
  • Are breastfeeding or plan to breastfeed. There is not enough experience to know if CRYSVITA passes into your breast milk. Talk with your doctor about the best way to feed your baby while you receive CRYSVITA.

While taking CRYSVITA, tell your doctor if you experience:

  • An allergic reaction such as rash or hives
  • A rash, swelling, bruising, or other reaction at the injection site
  • New or worsening restless legs syndrome

These are not all the possible side effects of CRYSVITA. Call your doctor for medical advice about side effects.

You may report side effects to the FDA at (800) FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Kyowa Kirin, Inc. at 1-844-768-3544.

For important risk and use information, please see the full Prescribing Information.

What is CRYSVITA?

CRYSVITA is a prescription medicine used to treat adults and children 6 months of age and older with X-linked hypophosphatemia (XLH).

Important Safety Information

You should not take CRYSVITA if:

  • You take an oral phosphate supplement and/or a specific form of vitamin D supplement (such as calcitriol, paricalcitol, doxercalciferol, calcifediol).
  • Your phosphorus levels from a blood sample are within or above the normal range for age.
  • You have kidney problems.

What is the most important information you should know about CRYSVITA?

  • Some patients developed allergic reactions (e.g., rash and hives) while taking CRYSVITA. Your doctor will monitor you for symptoms of an allergic reaction while you are taking CRYSVITA. Your treatment may need to be discontinued for serious allergic reactions.
  • High levels of phosphorus in the blood have been reported in some patients taking CRYSVITA. This may be related to a risk of high calcium levels in the kidneys. Your doctor will collect blood samples to monitor your levels. If you are already taking CRYSVITA, dose interruption and/or dose reduction may be required based on your serum phosphorus levels.
  • Administration of CRYSVITA may result in reactions at the injection site, such as hives, reddening of the skin, rash, swelling, bruising, pain, severe itching of the skin, and collection of blood outside of a blood vessel (i.e., hematoma). Call your doctor if you develop an injection site reaction. CRYSVITA may be discontinued if severe injection site reactions occur.

What are the possible side effects of CRYSVITA?

  • Adverse reactions that were seen in children with XLH are:

    • Fever
    • Injection site reaction
    • Cough
    • Vomiting
    • Pain in arms and legs
    • Headache
    • Tooth abscess
    • Dental cavities
    • Diarrhea
    • Decreased vitamin D levels
    • Toothache
    • Constipation
    • Muscle pain
    • Rash
    • Dizziness
    • Nausea

  • Adverse reactions that were seen in adults with XLH are:

    • Back pain
    • Headache
    • Tooth infection
    • Restless legs syndrome
    • Decreased vitamin D levels
    • Dizziness
    • Constipation
    • Muscle spasms
    • Phosphorus levels increased in the blood
  • Narrowing of the spaces within the spine is common in adults with XLH, and pressure on the spinal cord has been reported in adults taking CRYSVITA. It is not known if taking CRYSVITA worsens the narrowing of the spaces within the spine or the pressure on the spinal cord.

Before taking CRYSVITA, tell your doctor about all of your medications (including supplements) and medical conditions, including if you:

  • Are taking oral phosphate and/or active vitamin D (such as calcitriol, paricalcitol, doxercalciferol, calcifediol).
  • Are pregnant, think you may be pregnant, or plan to become pregnant. There is not enough experience to know if CRYSVITA may harm your unborn baby. Report pregnancies to the Kyowa Kirin, Inc. Adverse Event reporting line at 1-844-768-3544.
  • Are breastfeeding or plan to breastfeed. There is not enough experience to know if CRYSVITA passes into your breast milk. Talk with your doctor about the best way to feed your baby while you receive CRYSVITA.

While taking CRYSVITA, tell your doctor if you experience:

  • An allergic reaction such as rash or hives
  • A rash, swelling, bruising, or other reaction at the injection site
  • New or worsening restless legs syndrome

These are not all the possible side effects of CRYSVITA. Call your doctor for medical advice about side effects.

You may report side effects to the FDA at (800) FDA-1088 or www.fda.gov/medwatch. You may also report side effects to Kyowa Kirin, Inc. at 1-844-768-3544.

For important risk and use information, please see the full Prescribing Information.